Conquer Fragile X Foundation is blessed to have the support of some truly wonderful and generous people. You will probably not be surprised to learn that fragile X research is not the only cause that benefits from their generosity.

Mr. Arthur Rosenberg, a supporter of CFXF since the beginning, also volunteers his time and talent as a pilot to fly seriously ill children and adults to treatment centers throughout the Northeast. Through his volunteer work with Air Lifeline, Mr. Rosenberg provides the critical link between the patient and the treatment - transportation - for those who could not otherwise afford it.

Recently, on one of those missions, Mr. Rosenberg flew a five year old boy with neurofibromatosis, a life threatening condition, from Maine to Philadelphia for treatment at Philadelphia Children¹s Hospital - treatment not available in Maine. The child¹s family simply cannot afford the trip several times a year for treatment and they depend on the generosity and compassion of Mr. Rosenberg and others like him. Mr. Rosenberg contributes the use of his own plane, and expenses often run in excess of $1,000 per trip, all provided by the volunteer. Air Lifeline volunteers fly approximately 10,000 of these missions each year.

Thank you, Mr. Rosenberg, not only for what you do for Conquer Fragile X Foundation, but for your service to the many you have helped through Air Lifeline, as well

Three of the many hats worn by our president, Harris Hollin, include that of history buff, author and decorated Korean War Veteran. He and other "old soldiers" have gotten together to co-author, Christmas in July, "The Forgotten Battle of the Forgotten War".

Christmas in July is the story of a forgotten battle of the Korean War, told 50 years later by those who fought it. They left their homes in all parts of our country as boys. When they returned, they came home as men - changed forever. In the retelling of the story, many veterans found relief from the nightmares that plagued them all these years. Recalling and reliving their youth energized these old soldiers. This account brings you on patrol and into the bunkers along side them. A moving story, previously untold, by those that know it best.

The 215 page book is available in paperback at a cost of $15.95 plus $4.00 for shipping and handling, for a total of $19.95. You may purchase the book by check, money order or credit card. Please use the order form below to order your copy. Remember, all profits from this book will be made available to Conquer Fragile X Foundation to support fragile X research projects.

Longitudinal MRI Study of Brain Development in Fragile X

The goal of this study is to increase the understanding of how the young brain develops and to look for abnormal patterns of brain growth in children with fragile X. Brain growth and development in this group will be compared to that of children with global developmental delay and typically developing children. This

study is enrolling boys between 18 and 24 months, with fragile X.

Family Adaptation to Fragile X

The primary aim of this new study is to provide important insights into the family consequences of FXS and show how genetic, family, child and other variables affect adaptation. Families of boys and girls to 12 years old who have fragile X and live in the US can take part in this study.

Both studies are funded by the NIH. If you are interested in participating in these studies or would like more information, call the UNC Research Registry at (866) 744-7879.

Click Here to learn more about Christmas in July, " The Forgotten Battle of the Forgotten War"

All profits from the sale of this book will be donated to Conquer Fragile X Foundation to support Fragile X research projects. This 215 page book is available in paperback at $15.95 plus $4.00 for shipping and handling.

Avon Park Press · Rydal, PA