BOARD OF ADVISORS
Martin Blackman
New York, NY
Jennifer Jaques
London, England

Elissa Boory
Cherry Hill, NJ

Nick C. Jones
Marietta, GA

Jeffrey Cohen
W. Bloomfield, MI

Ray G. Kalil
Nashville, TN

Ofer David
Haifa, Israel

Joseph Kerzner
Toronto, Ontario, Canada

Rosalee Davison
Baltimore, MD

Allen Mason
Palm Beach, FL
Sheila Engelstein
Palm Beach, Florida
Alan H. Miller
Palm Beach,FL

Marti Gammon
Miami, FL

Moshe Modai
Tel Aviv, Israel

Randy Green
Pembroke Pines, Florida

Asher Naim
Jerusalem, Israel

Kimberly Grimmel
Deerfield Beach, Florida

Samuel J. Rosenfeld
Chevy Chase, MD

Joseph Gurwin
Great Neck, NY

Phyllis Siegel
Owings Mills, MD

Arnold J. Hoffman
Palm Beach, FL
Vi Werner
Minneapolis, MN
 

www.hollinbooks.com

Please visit this website and view "The Handcolored Antique Book collection of Harris N. Hollin". The CFXF Founder and President has compiled a simply amazing collection of hand colored antique books and, with pleasure, shares them on his website. Only 5% of approximately 13,000 handcolored plates are viewable now, with more added all the time. Get there by linking from www.cfxf.org!

CONGRESS APPROVES BILL
EXTENDING RESEARCH

Working with FRAXA Research Foundation's Washington lobbyist, David Busby, Conquer Fragile X Foundation took an active part in urging passage of the following legislation through letters written to legislators by our network of families and supporters.

On Wednesday, September 27th, Congress approved a measure that would expand research on the genetic disorder Fragile X. The measure was part of a larger bill that expands research for a broad range of childhood diseases and disorders. Backed by Sen. John Edwards (D-NC), the provisions related to Fragile X call for the National Institute of Child Health and Human Development to establish at least three research centers, at an annual cost of approximately $10,000,000, devoted to the disorder. Edwards said, "Fragile X is the leading cause of mental retardation, but many people have never heard of it. We must raise awareness about Fragile X and encourage research efforts." Earlier this year, Edwards successfully pushed the Senate to pass a resolution declaring July 22 as Fragile X Awareness Day.

UNITED WAY DONATION REMINDER
Anyone wishing to contribute to CFXF thru the United Way may do so by using our number 32236

YOU DON’T HAVE TO BE A MILLIONAIRE TO LEAVE A LEGACY
Many find that the simplest and most inexpensive way to provide a gift for the future is by providing a bequest in their will or trust. If you are considering such a gift, Thank You. And, please be sure to use our proper legal name, “Conquer Fragile X Foundation”. All gifts received through wills and bequests become part of our permanent endowment fund and may be named in honor or memory of a loved one. Please feel free to call or have your attorney call, Ronald Kochman, Esq. at (561) 802-8960.

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Harris Hollin, Chairman & Founder ¤ Karen Fay, President
PO Box 128Palm Beach, FL 33480
Telephone: 561-833-3457 Fax: 561-833-8791
Email: mail@cfxf.org

CFXF is a not-for-profit tax exempt 501c3 organization
Tax ID No 65-0910605


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